Greetings IMA community!
I am the father of a former cancer child.
She was diagnosed in May 2018 with stage 4 neuroblastoma. She underwent treatment at an Illinois pediatric hospital. I probably read more than any doctor in training over the course of her 2-year treatment, researched every chemo agent and anything they wanted to inject her with, alternative diets and cures, etc., and generally tried to “extract” and contain as much as I possibly could in my overly burdened brain at the time.
I tried to quantify the progress, be prepared for the worst, and have alternative plans in place in the event of failure of conventional treatments.
Sure enough, even prior to our discharge two years later, I was not happy with the results and the child’s progress. Her Curie score had remained the same, and even the doctor’s clinical summary while exploring the option for DFMO stated “partial containment” of her disease.
I had researched the best surgeon to perform the tumor removal but was discouraged or not allowed to take the child to Boston. We nearly lost our child during this surgery, were called into the room to say our final farewell as she went into cardiac arrest for 2 minutes, having rejected the blood transfusions (my earlier request to donate blood for her surgery was previously denied).
I was always advocating for the scientific approach and am grateful to the doctors for allowing this! There were instances where they were wrong, and they honored my requests — and I am most grateful for this! (i.e., we were told that there was no way prior immunity would be present after stem cell transplant; however, surprisingly, titer tests proved the contrary for several!)
Mid-treatment, not seeing the greatest results, I had somehow found a molecular biologist in Europe who performs advanced patented gene expression testing. I am most grateful to the hospital for allowing the sample to be sent. Through this doctor in Europe:
* I was informed that all chemo agents would fail (and they appeared to be failing at the time; the rest eventually did as well).
* I was informed of chemo agents that could benefit us; however, when presenting these to our treaters, I was told that the chemo agents were not approved for the treatment of my child’s disease and could not be incorporated.
* I was informed of the hyperactive neuro pathway that allowed the disease to progress.
* Natural supplements were identified that could suppress this hyperactive pathway and provide slow but gradual healing to the child.
* My child’s disease was described as non-aggressive, leading me to believe, in retrospect, that the doctors’ drastic actions with heavy, harmful treatments were wrong.
Another opinion from Sloan Kettering near the end of treatments confirmed that conventional treatments had failed. Since there was no option for additional chemo, radiation, or surgery, our only hope for the child was slow but gradual healing through natural supplements and diet.
Fast forward: three years later, the child, on the recommended epigenetic supplements, is disease-free, out of risk, and no longer followed. Her Curie score dropped to a 1 (from 3 at the time of admission and discharge).
A few things that still bother me:
* I made three attempts to speak with dietitians while in treatment and discussed diet frequently with the oncologist. I kept getting the response that “as long as the child gets the calories she needs, everything is OK.” They even responded positively that it was OK for me to feed my child McDonald’s every day, as long as she got the necessary calories.
* I was heavily scrutinized for not allowing my child to receive the COVID vaccine — literally treated as a second-class citizen and as if I were in blatant disregard for my child’s well-being. (Mind you, the child was routinely tested and had previously tested positive while minimally symptomatic, hence had acquired natural immunity.)
* The hospital prioritized utilizing their “in-house surgeon” for a surgery they knew was a 10/10 in difficulty. My wish was not granted to see the better surgeon. It took a month to close up her stomach and sew her back together, and we received a bill at home in the amount of $850,000 for the month (and I still receive weekly solicitations to donate to them, lol).
At this time, I am currently in the process of a messy divorce and have been stripped of my parenting and medical decision rights to my children by court “advocates” who make family court a competitive sport — one that I chose not to play. I was labeled as a radical “anti-vax extremist,” even though my involvement saved my child and my views have been derived from mentors who currently staff the CDC — and have retroactively been proven correct.
I am seeking anyone who can assist in my vision:
To create an organization that would allow other families to explore alternative treatment options for their child, be allowed to seek customized treatments, and provide funding for advanced testing that could assist in determining a more appropriate, customized treatment plan — one that the medical establishment will never fund studies for or acknowledge.
The specific European doctor — a Sloan Kettering–trained post-PhD researcher — warned me of “shaking the waters,” and I know enough to know that this will not be easy. I have already been silenced, restricted and served a motion in limine from the local hospital and barred from expressing a medical opinion.
I will not decline any offers to assist me in my ongoing personal nightmare (i.e Just last week, my child was vaccinated against my will for the flu shot — despite my verbal objection, the recent Cleveland Clinic finding, and despite having recovered from it the week prior)— perhaps a medical or legal expert willing to speak up and support me in family court? Go against the hospital and use the proceeds toward my vision? (I do not want to profit from this, just find peace and justice)
Feel free to get in touch - thank you for reading, God bless us and God Help Us!
Lovely offer Dr. Joyce - thank you