Has anyone heard of or had experience treating long covid presenting as chronically enlarged lymph nodes of the neck and head? My husband has been suffering for 4 years with chronically enlarged lymph nodes in the neck and head after his bout with covid in 2021. Fatigue, joint pain, and his face gets really red as the day progresses. It first started after COVID, then at the one month mark or so he was getting night fevers and chills. then his lymph nodes swelled up and has been basically suffering since then.
I suspect the following:
Reactivated EBV
Lyme infection acquired most likely through me.
He also has had oral herpes for a good portion of his life but since this issue, has NOT had any cold sores (except once when I gave him L-lycine a bit after he started prednisone).
Im an herbalist and tried several things treating Lyme (which he did Herx) but he stopped everything before I could try the whole EBV protocol.
Doctors will not try a viral med like acyclovir, but my doctor tried Ivermectin and it didn’t help.
He is now all with the conventional stuff and at the whim of the Dartmouth NH Cancer ward using Rutixamab injections bc they thing it may turn to cancer or something. He has had several injections (monthly) for over a year. It’s not helping, but he keeps doing it bc the doctors have no clue.
He tried my more natural doctor’s approach which involved reducing histamine in his diet, but he is not one to keep that going. We did see a shift in the lymph swelling (it went down and the nodes got very hard), but he stopped. He has been on low dose steroids for these past 4 years so I cant support his immune system like I would normally do and I have basically washed my hands of it in trying to help him.
If anyone has any clue or could help I would greatly appreciate it. If he goes off the prednisone, he can’t function very well. Thank you in advance.
I did reach out to Dr. Ryan Cole some time ago bc he I guess suffers from recurring EBV, but he never responded. I think Im on the right track with EBV, but would love some feedback.
Beim Long- Covid handelt es sich um eine Störung des zellulären Energie- und Immungleichgewichts, verursacht durch autonome und mitochondriale Dysfunktion sowie oxidativen Stress. Reaktivierte/ persistierende Virusinfektionen spielen eine Rolle. Selbst nach Abklingen einer Virusinfektion persistiert eine Immunaktivierung. Dadurch entsteht ein sich selbst verstärkender Krankheits-Kreislauf. Medikamente wie Cortison fördern dies.
Therapieziele sind deshalb: Beseitigung der Dysautonomie, Beseitigung der Immuntrigger v.a. im Magen-Darm (Darm-Hirn-Achse - 80% unseres Immunsystems ist im Darm) und damit Beseitigung der chronischen Entzündung.
Durch die Förderung der Durchblutung und des Stoffwechsels durch adaptogene Reizbelastungen (z.B. Hydrotherapie mit fachkundiger Anleitung über längere Zeit) kann eine Energieregeneration gelingen. Voraussetzung für einen Erfolg ist die Beachtung der individuellen körperlichen Leistungsgrenze bei allen Aktivitäten (ggf. mit Pacing).
Bei medikamentösen Therapien, insbesondere wenn mehrere Medikamente eingenommen werden, ist zu beachten, dass die Körpereigenregulation nicht blockiert wird und die Voraussetzung für die Fähigkeit zur Selbststabilisierung und Normalisierung erhalten bleibt.
Sprechen Sie mit Ihrem/m Arzt/Arzt oder Heilpraktiker/in darüber!
Ernährung- Heilpflanzen - Nahrungsergänzungen – was ist zu empfehlen?
Viel Trinken -2-3 Liter am Tag – Bei Reizdarm können Kräutertees mit karminativen und antiviralen Stoffen helfen. Langsam essen, gut kauen, aufhören, bevor Sie ganz satt sind.
Das bewirkt in unserem Körper eine Stoffwechselumstellung, wie wir sie beim Intervallfasten oder einer ketogenen Diät finden, um Entzündungen und infizierte Zellen zu reduzieren.
**(Translation of post above - just fyi and thank you/danke @hum07 ** )
Long COVID is a disorder involving a disruption of cellular energy balance and immune regulation, caused by autonomic and mitochondrial dysfunction as well as oxidative stress. Reactivated or persistent viral infections play a role. Even after the initial viral infection has subsided, immune activation continues, creating a self-perpetuating cycle of illness. Medications such as cortisone can promote this process.
Therapeutic goals therefore include: eliminating dysautonomia, removing immune triggers—especially in the gastrointestinal tract (gut-brain axis, as 80% of our immune system resides in the gut)—and thereby reducing chronic inflammation.
By improving circulation and metabolism through adaptive stress stimuli (for example, hydrotherapy under professional guidance over a longer period), energy regeneration can be achieved. Success requires careful attention to one’s individual physical limits during all activities (possibly using “pacing” techniques).
In drug-based treatments, especially when multiple medications are being taken, it is important to ensure that the body’s natural regulatory mechanisms are not blocked and that the ability for self-stabilization and normalization is preserved.
Discuss these strategies with your physician or naturopathic practitioner.
Nutrition – Medicinal plants – Supplements: what is recommended?
Drink plenty of fluids—2 to 3 liters per day. In cases of irritable bowel syndrome, herbal teas containing carminative and antiviral compounds may help. Eat slowly, chew well, and stop eating before you feel completely full.
This approach promotes a metabolic shift similar to what occurs during intermittent fasting or a ketogenic diet, helping to reduce inflammation and infected cells.
