Long-COVID Consortium: Finally a Place to Turn?”

Public Forum
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“Patients feel abandoned. The doctors actually helping them get brushed aside. We’re fixing that.” Secretary Robert F. Kennedy Jr.

What’s happening?

Brand-new “Long COVID Consortium” has been launched today.

Goals:

Develop a directory of trusted physicians so patients can instantly find doctors who treat long-COVID (and post-vaccine injury) with experience, not guesswork.

Fast-track research on off-label / repurposed drugs (think low-dose naltrexone, anticoagulants, ivermectin—like the early AIDS-era playbook).

Real-world data hub to turn frontline success into formal protocols.

Dr. Jordan Vaughn (IMA Senior Fellow & leading long-COVID clinician) is joining the panel—bringing hands-on treatment experience to the consortium’s steering group. :tada:

What are your thoughts, tell us below. :backhand_index_pointing_down:

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Watch the announcment on X https://x.com/HHSGov/status/1968747754189992329?t=e3W-YrcQZq47MVQzTvmuPw&s=19

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Great News. Another member of the IMA team is helping to make a positive impact on our health care system with the power of our government behind them.

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Wow. I don’t know how many times I have felt and continue to feel like saying “Thank you” to Secretary Kennedy.

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:100: percent agree

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:clap::blush: Amazing

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It would be very helpful to have a concise list of providers who treat those injured by spike protein and other adjuvants in injections of all kinds.

I would say most, if not all, of the patients I take care of with chronic illness have received the mRNA injections as well as other “vaccines” in recent years including, but not limited to, annual influenza shots.

Pre-existing autoimmune conditions that were otherwise well managed were exacerbated by the Covid shots and many others seem to have no functioning immune systems at all anymore and are ill repetitively with respiratory and other infections.

Doctors in our area, indebted to pharma and caught up in the Boston and other healthcare monopolies, continue to be “baffled” and offer little more to patients than expensive drugs manufactured by Pfizer, et.al.

Conventional cancer treatments offered to several of my patients (as well as a few friends and family members) have only hurried along their ultimate demise.

I do hope this list is published soon so that those who are suffering will have have options rather than only “one size fits all” protocols that put profits over patients.

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Thank you @theornerynurse for you dedication to your patients and for your contributions to the forums.

The IMA is working hard at building these lists.

However, other sites that could help are:

This link to a map displays the locations of 2646 direct primary care (DPC) practices across all 50 states.

https://mapper.dpcfrontier.com/

React 19 have provider lists: https://react19.org/patients/find-a-provider

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You know, as a person who is vaccine injured and as a patient, I’ve learned that the information is out there for so many things, though the information is scattered about and it is difficult for a provider to ramp up on not just treatments but testing. For example, if a provider suspects a patient is vaccine injured, what do they test for?

As an example, I just learned about the following:

Chronic Fatigue and Dysautonomia following COVID-19 Vaccination Is Distinguished from Normal Vaccination Response by Altered Blood Markers - PMC

Dr. Been provided the above reference in Long Story Short Episode 78: COVID Shots, Chronic Fatigue, and Altered Blood Markers - Independent Medical Alliance.

What to test for?

  • AT1R Ab

  • Alpha2b-adr-R Ab

  • IL-6

  • IL-8

Those 4, at least as of 2023, were found to identify the difference between a vaccine injured and a vaccine uninjured person. Though I should say that the latest 2025 article IMA Health put out further argues that there is no such thing as a vaccine uninjured person, rather, anyone who has been exposed to the vaccine is injured in some capacity. It is an accumulation of exposure, and you may be sub-clinical.

I guess my point is that if you already have a good provider willing to work with you as a patient, but they are simply lacking information of where to start with testing and identification, how do they ramp up and then become involved and listed?

We’re in an interesting uncharted territory due to what Dr. Kory labeled in his book as the “Church of RCT Fundamentalism” (RCT = Random controlled trials):

“The problem was that the combination had not yet been “proven” in some large, prospective, multi-center, double-blind, randomized controlled trial, and that is currently the only evidence that can make changes to therapeutics in the US health system. The horrific departure of this policy and practice from the long-standing reliance of physicians on the powers of medical knowledge, logic, observation, reason, pragmatism, and the precautionary principle of relying on risk/benefit assessments is now legion. It also quickly led to the most catastrophic mortality rates of ICU patients in history. All because the entirety of US academic medicine, over the last twenty years, has been reduced to a “Church of RCT Fundamentalism,” a conversion that was wholly fueled by Big Pharma, as they essentially control the funding, design, and even outcomes of such trials.”

Further:

“A New York Times Magazine article quoted one researcher as saying that relying on gut instinct rather than evidence (in other words, published RCTs) was essentially witchcraft. Witchcraft!”

So, as a patient, what I’m looking for is those folks who are not part of the Church of RCT Fundamentalism, and who are educated in the art of real medicine when it comes to vaccine injury. But those providers are not going to get their education from some board certification. This is where the uncharted territory begins and where IMA Health and others are having to blaze new trails.

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We’re starting a whole new religion - It’s called Honest Medicine™. We’ve even trademarked it, which really means we’re going to always have to live up to it.

It’s a whole new, old-fashioned type of questioning, curious, caring kinda science. Incredible for all of us to be a big part of this revolution.

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:heart: It’s a great name!

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I look forward to seeing a “Honest Medicine™ Board Certification” hanging in doctor offices. :grinning_face:

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As I sit here thinking about what would “Honest Medicine™ Board Certification” or membership look like? Bruce Lee and his philosophies came to mind.

Bruce’s form of martial arts, Jeet Kune Do, is like Honest Medicine™ and the other forms of martial arts are like the forms of medical dogma that exists in the world today.

As Bruce explained, Gung Fu is the sum total of all martial arts, and it is too great for one person to learn all of it. The same is true of medicine. Instead of training and saying, “I’m an expert in Karate” or “I’m an expert in Jiujitsu” and so on, it is better to study each and learn what is of value in each and what is useless. Finding medicines and using them off label is the same concept. If Honest Medicine™ were to have a slogan, it would be something like Jeet Kune Do’s slogan: “Using no way as way” and “Having no limitation as limitation”

“Empty your mind.
Be formless, shapeless, like water.
You put water into a cup; it becomes the cup.
You put water into a bottle; it becomes the bottle.
You put it into a teapot; it becomes the teapot.
Now water can flow, or it can crash.
*Be water, my friend.”
*— Bruce Lee

That’s the doctor I want.

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:flexed_biceps: Maybe something on the Honest Medicine™ Board Certification like - “Proven to be highly effective in the art of thinking. p.s also proven to be formless like water.” :grinning_face_with_smiling_eyes:

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:+1:

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:joy:

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I am definitely interested in having my team be listed in the directory of physicians in the Long-COVID Consortium. What do we need to do to make this happen? Also, if I can be of any help getting this set up, please let me know. We have been working with all things COVID since February 2020 and have a great deal of experience. Thank you for letting us know about this consortium.

Dr Linda Wright

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HI @ArizonaRealHealth - here’s a bit of info from AI on the Long Covid Consortium.

Hope it adds a bit of background. The short of it is currently we wouldn’t know how to list an organization with them. As soon as we know, we’ll put it up here.

The U.S. Department of Health and Human Services (HHS) recently launched a Long COVID Consortium to address the urgent and ongoing needs related to Long COVID. Announced by Secretary Robert F. Kennedy Jr. in September 2025, this initiative aims to bring together government agencies, researchers, clinicians, and patient advocates to accelerate research, clinical trials, and public awareness about Long COVID.​

Consortium Goals and Activities

The Long COVID Consortium is intended to:

  • Coordinate efforts among the National Institutes of Health (NIH), the Food and Drug Administration (FDA), and the Advanced Research Projects Agency for Health (ARPA-H) to prioritize Long COVID research​

  • Launch a public education campaign and develop an “open source” medical resource platform to disseminate information to patients and providers.​

  • Accelerate the development of potential treatments, biomarkers, and trial designs to better address the needs of those suffering from Long COVID​

Patient and Community Involvement

While the roundtable events and formation of the consortium have involved some patient advocates and leading researchers, some in the Long COVID community have expressed concerns about inclusivity and whether the initiatives will sufficiently meet their needs. There are calls for more diverse representation, deeper engagement with patient groups, and greater transparency regarding the consortium’s participants and research roadmap.​

Recent Policy and Funding Landscape

Despite the formation of the consortium, there have not yet been announcements of substantial new federal funding specifically for Long COVID research or patient support. The consortium is separate from the longstanding NIH RECOVER program, which has faced criticism for its progress and funding use. Earlier in 2025, the Trump administration had terminated several advisory bodies and cut grants related to Long COVID, though some were later restored following advocacy efforts.​

Ongoing Challenges

The Long COVID Consortium is still defining its structure and activities. Key issues include:

  • A need for more comprehensive and representative patient involvement.​

  • Pressure to offer tangible results and evidence-based treatments more quickly.​

  • A call for better infrastructure and more robust funding streams to support research and care for individuals with Long COVID.​

Overall, the HHS Long COVID Consortium marks a renewed federal focus on Long COVID; however, many advocates and patients are watching closely to see if these efforts translate into meaningful progress and support.​

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In order to be “Board Certified” there must first be a “Board” to do the certification. So the first step would be to plan for a series of Boards for various specialties. This I would assume would be a major undertaking and would require a lot of commitment from the IMA staff. Being a non-profit would not be a barrier, but being a donation based organization for funding sounds like a significant barrier to me. Until there is a new financial structure in place to support this type of effort, I don’t see anything materializing for this type of program. It is a great idea and would be a huge step in challenging the AMA but needs a significant amount of money to get the ball rolling. Long term in the planning for IMA growth this type of effort might be possible, so let’s see where the IMA leadership takes the organization and hopefully this type of structure materializes sooner rather than later.

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:+1: You’re right. and the long term thinking along these lines is happening to see if it’s viable and “On Brand”, but, as you say, everything we do needs to be scoped, agreed as an initiative and funded before we can all make it happen. And yes, it’ll probably mean a different financing structure.